Quality of life in osteogenesis imperfecta. Academic Article uri icon

Overview

abstract

  • The purpose of this study was to quantify the physical and mental health of a diverse adult cohort of patients with osteogenesis imperfecta (OI) utilizing a validated health self-assessment questionnaire (SF-36). In addition, a specific demographic questionnaire and a functional questionnaire were utilized to assess more specifically the physical limitations imposed by osteogenesis imperfecta in adulthood. The results of the SF-36 revealed significantly lower physical function scores compared to the U.S. adult norms. However, the SF-36 mental component scores were equal to the U.S. adult norms. The demographic questionnaire revealed high levels of educational achievement, as well as employment, despite significant physical impairments. The functional questionnaire clearly demonstrated limitations mostly related to ambulation.

publication date

  • January 1, 2002

Research

keywords

  • Osteogenesis Imperfecta
  • Quality of Life

Identity

PubMed Central ID

  • PMC3620845

Scopus Document Identifier

  • 0036940688

Digital Object Identifier (DOI)

  • 10.1007/s002640100292

PubMed ID

  • 11954845

Additional Document Info

volume

  • 26

issue

  • 1