Measuring health-related quality of life outcomes in head and neck reconstruction. Academic Article uri icon

Overview

abstract

  • A qualitative study was undertaken to understand the impact of omitted health concepts in existing patient-reported outcome (PRO) instruments for health-related quality of life (HR-QOL) evaluation following head and neck (H&N) cancer reconstruction. Twenty-six patients were interviewed. Patients described a broad range of symptoms. Oral competence, rhinorrhea, facial sensation, smile, vision and eye discharge are missing from existing PRO instruments. Altered appearance was a major stressor; both function and appearance changes had a negative psychosocial impact leading to social isolation and embarrassment. This framework is the foundation for development of a more complete PRO instrument, the FACE-Q Oncology.

publication date

  • November 26, 2012

Research

keywords

  • Head and Neck Neoplasms
  • Outcome Assessment, Health Care
  • Patient Satisfaction
  • Plastic Surgery Procedures
  • Quality of Life

Identity

Scopus Document Identifier

  • 84875331640

Digital Object Identifier (DOI)

  • 10.1016/j.cps.2012.10.008

PubMed ID

  • 23506775

Additional Document Info

volume

  • 40

issue

  • 2